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‘It’s not a contagious disease’: Singaporean, 29, and mum shunned due to genetic condition that disfigures them

Ms Nur Nabilah Zakaria (pictured) has been diagnosed with neurofibromatosis since she was 12 years old.
Ms Nur Nabilah Zakaria (pictured) has been diagnosed with neurofibromatosis since she was 12 years old.
Neurofibromatosis type 1 is a rare incurable genetic condition that comes with skin changes and tumours growing along the nerves
It can also affect bones, vision and other bodily systems
The tumours are usually benign but can sometimes become cancerous
People with the genetic condition often face social stigma and negative emotional experiences due to the physical symptoms
A 29-year-old and her 61-year-old mother told of the heartaches they experienced after being severely disfigured
5 STORIES REMAINING