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rare disease

Showing you Page 1 of 1 with 14 stories on "rare disease"

The Stories Behind: The one-eyed tattoo artist who won't let a rare disease affect his craft

The Stories Behind: This aspiring pilot was given a year to live at 23. He beat cancer and now aims to fulfil his dream

Living with spinal muscular atrophy: Patients pay millions for drugs or face rapid decline in quality of life

Community Heroes: How I live with an autoimmune disease and help fellow patients find support and form friendships

Commentary: Life-changing treatments for my terminal disease may soon be within reach, but here’s why I’m going to hold off

Gen Y Speaks: How I discovered my youngest child has a rare disease inhibiting her growth and what it means

‘Smells like rotten fish, feels like a curse’: Pain, odour and isolation for people with rare skin disease

Gen Y Speaks: My child is the only one in Singapore with this disease. Every day he is alive is a blessing to us

Paralysed former journalist co-writes book on rare degenerative disease ALS to show he 'still can give back to society'

Commentary: Having a rare disease has helped me to be super in my own way, even without superpowers

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Strides made towards an inclusive S'pore but more can be done, say disabled community and experts

Baby in NUH ICU with severe disease, parents hope to raise S$3 million for 'world's most expensive drug'

A rare disease diagnosis came too late for this boy, who says he’s not ‘poor thing’

The dad in China making medicine to treat his dying son

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