Living with Pompe disease
“We are not just keeping her alive. We want to give her a life that any other child is entitled to,” says Patricia Ng, mother of Chloe Mah who suffers from Pompe disease.
Chloe was diagnosed with the rare fatal condition at 7 months and was not expected to live past her first year.
She is celebrating her 12th birthday this year.
Read more here.
Video: Raj Nadarajan/ TODAY